Inclusive measure development: amplifying the voices of adolescents and young adults with spina bifida in a new measure of benefit-finding and growth

This journal contribution is published Open Access by the publisher. Follow the DOI link to retrieve a copy of the full text. The authors thank the national Spina Bifida Association (SBA), the Illinois Spina Bifida Association (ISBA), Spina Bifida Texas (SBTX), and the numerous individuals with spina bifida and their families who participated in this research. Additionally, thank you to Kathy Zebracki, PhD, for serving on the expert review panel for the measure development.